Thursday, November 4, 2010

Hi There :)

Long time, no blog! Life has been busy and blogging got away from me. In fact, lots of things have gotten away from me. Let's see...in the last four months we have been caring for a toddler with special needs, learned our perspective on what constitutes a "difficult" child is highly skewed...in fact you might call us "desensitized" (hey, as long as they don't play with fire and they sleep 5 hours a night what is there to complain about?), my doctor diagnosed me as "weird" (and with EDS), Isaiah went through some testing with a psychologist that I think is going to be a big help, we've been going through the process of getting DDSD services set up for him and planning for his adult years (it's never too early, especially when the waiting list is like 8 years long!), we got a new puppy, started remodeling the house, we started school, joined a new homeschooling group and have been taking weekly classes (ok, so we don't make it every week..we've been passing around various viruses too), had a ton of doctor and therapy appointments and the list goes on and on and on.

We're at that joyous time of year when I try to find winter shoes for Zay's odd little tootsies. The orthopedic shoes I bought last year still fit him length wise, but are so tight around that he's got blisters on the bottoms and tops of his feet from wearing them once. I can't take out anymore insoles, they are as deep as they get.

His toenails on his big toes have continued to become misshapen, and detach around the quick. It looks like he'll lose most of the nails, if not all of them eventually. Meh, toenails shmoenails, right? It doesn't seem to bother him unless we try to stuff them into shoes. After that whole hole in his skull thing toenails seem pretty minor.

There is much gnashing of teeth and rending of garments in my house, something about a toaster and broken eggs, so I'll update with pics later.

4 comments:

Anonymous said...

Hi Shannon

I've been reading Isaiah's blog because me son, Hayden, 5, also has AOS (although undiagnosed) and we're currently going through the tissue expansions for his scalp with heaps of dramas! I wanted to talk to you more about the process for Isaiah if I can. Please contact me at leesaspeed@hotmail.com

Leesa

Anonymous said...

I just read your latest post.
I (and my twin) have EDS (type 3- hyper mobility)
My sister has a EDS related blog if you are interested:

www.flexibilityandcreativity.blogspot.com

Cheers,
Rachel.

Anonymous said...

Sorry, I also forgot to mention the EDS website:

www.ednf.org

There are also a ton of people on facebook with EDS who have seemed to find eachother.

If you are interested in going the facebook route, please tell me how to send you an e mail and i will send you my/my sister's info (to make the facebook route a little easier on yourself)

Cheers again, Rachel.

Isaiah'sMom said...

Thanks Rachel!